Last week was the craziest week so far. We thought it was painful enough to go through the diagnosis (and trust me it is) but this completely blindsided me. Max had a bit of a snotty nose and then started this horrible cry where he would open his mouth and obviously be really upset with his face but no noise would come out. This made me really anxious and worried about him. I kept saying to my husband that he wasn't ok, something wasn't right. But the health visitor was coming on Tuesday and I thought it was just a little cold/sore throat. Then over night he stopped feeding properly and kept crying out with a blood curdling scream. We were about to give him a bottle at 10.30 as he hadn't fed since 6am when he suddenly latched on. We were ecstatic. The midwife showed up and he was still feeding, 20 mins later. Then he decided to stop breathing. He went completely blue and stopped breathing for at least 30secs - a minute. He did this three times and the midwife wasn't even sure what to do. We called an ambulance and they sent a paramedic car, he did it again whilst waiting so we called 999 again and had them on the phone when he did it again, went unresponsive. Blue then grey. Eyes then opened but he wouldn't respond. Terrifying. We were blue lighted to our local hospital. He had another episode in the ambulance so was put on oxygen. Then 3 more at hospital whilst with the emergency team. They decided to put him to sleep and on a ventilator whilst they awaited a transfer to a cat 3 children's hospital. We ended up in intensive care for 4 days on a ventilator. He decided whilst on a ventilator to scare the nurses and refuse to breathe again. But eventually we were discharged to HDU and then home on Sunday. He still has a cough, heavy chest and a cold. But is so much better. Will have around 2 weeks before he is ok again. But I am so glad he is home and so glad he is ok. Having him on a ventilator and asleep is the scariest thing ever. Full story has been
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